New Study Links Mitochondrial Issues and Autism

Mitochondria are tiny organelles within each of our cells.  Their job is critical: they provide the energy cells need to function.  When mitochondria function poorly, our bodies may experience a variety of problems ranging from neurological issues to muscle cramps.  According to a new study, mitochondrial dysfunction is more common among people with autism. The study, which looked at a total of ten children (10 with and 10 without an autism spectrum diagnosis), found a signficant decrease in mitochondrial function among children with autism.  Researchers were able to test mitochondrial function through a blood test; this in itself was significant because typically mitochondrial disorders can only be identified through an expensive and painful muscle biopsy.

While the study does not specifically suggest that mitochondrial issues are a contributing cause of autism, the press release does state: "Taken together, the various abnormalities, defects and levels of malfunction measured in the mitochondria of autistic children imply that oxidative stress in these organelles could be influencing autism's onset."  The press release goes on to quote one of the researchers:

Giulivi cautions that these findings do not amount to establishing a cause for autism.

"We took a snapshot of the mitochondrial dysfunction when the children were 2-to-5 years old. Whether this happened before they were born or after, this study can't tell us," she said.  "However, the research furthers the understanding of autism on several fronts and may, if replicated, be used to help physicians diagnose the problem earlier."

"Pediatricians need to be aware of this issue so that they can ask the right questions to determine whether children with autism have vision or hearing problems or myopathies," Giulivi said. Exercise intolerance in the form of muscle cramps during intensive physical activity is one of the characteristics of mitochondrial myopathies.

The chemical fingerprints of mitochondrial dysfunction also may hold potential as a diagnostic tool. Giulivi and colleagues are now examining the mitochondrial DNA of their subjects more closely to pinpoint more precise differences between autistic and non-autistic children.

This study is of interest to the autism community not only because of its scientific relevance, but also because it seems to relate directly to the Vaccine Court case in which the Poling family won a multi-million dollar settlement.  The Poling's were compensated for their daughter's vaccine-related injuries which, according to medical evidence, were the result of an underlying, asymptomatic mitochondrial disorder.  While there is some uncertainty as to whether Hannah is "officially" diagnosable on the autism spectrum, there is no doubt that her symptoms are at the very least very similar to the symptoms of autism.

More About Mitochondrial Disorders, Autism and the Poling Case

New Study Links Mitochondrial Issues and Autism originally appeared on About.com Autism on Tuesday, November 30th, 2010 at 16:21:10.

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Guidelines Call for Increase in Vitamin D

Source WebMD

New guidelines for vitamin D call for increasing the recommended dietary allowance (RDA) of vitamin D to 600 international units (IU) for everyone aged 1-70, and raising it to 800 IU for adults older than 70 to optimize bone health.

The guidelines, released by the Institute of Medicine (IOM), also raised daily calcium RDAs.

The new guidelines call for a recommended dietary allowance of 700 milligrams of calcium per day for children aged 1 through 3, 1,000 milligrams daily for almost all children aged 4 through 8, 1,300 milligrams of calcium per day for adolescents aged 9 through 18, and 1,000 milligrams for all adults aged 19 through 50 and men until age 71. Women starting at age 51 and men and women aged 71 and older need 1,200 milligrams of calcium per day.

The majority of Americans and Canadians are getting sufficient vitamin D and calcium, the new guidelines state. Some adolescent girls aged 9-18 may fall below the daily recommended level of calcium intake, and some elderly people may have an inadequate intake of calcium and vitamin D.

The older vitamin D guidelines call for a recommended dietary allowance of 200 IU a day for people up to age 50, 400 IU a day for those ages 51 to 70, and 600 IU a day for those older than age 70.

Vitamin D helps the intestines better absorb calcium and plays an important role in bone health. It is often called the “sunshine vitamin” because our bodies make it when exposed to sunlight. It is often added to milk.

Growing numbers of studies link vitamin D deficiency to diseases such as heart disease, certain cancers, and diabetes. The studies show associations that indicate further investigation is needed and do not necessarily prove that vitamin D deficiency has a causative role. Many scientists were hoping that the new dietary intake levels would go even higher to reflect the findings of these studies.

But “we don’t think more is better,” says committee member Clifford J. Rosen, MD, a senior scientist at the Maine Medical Center Research Institute in Scarborough. “We believe that taking in amounts larger than 600 to 800 IU a day has no extra benefit for bones.”

Do You Believe Vaccines Cause Autism?

Despite assurances from a huge majority in the research and medical communities, many people believe that vaccines are a major cause of autism. Where do you stand on this controversy? Why?

Anyone interested in weighing in on this issue is welcome to do so by creating a permanent editorial statement which will become part of this site.  To do so,  just click here and fill in the blanks!  Of course, you'll need to keep your response relatively brief and civil.  Just so you know, I'll need to moderate and approve all submissions, so it may take a while to see yours on the site.  But please rest assured that I will not censor any submission on the basis of content unless it contains personal attacks.

Want to talk about the subject of vaccines as a cause of autism?  Join the discussion on the Forum.

Thanks so much for your participation!

Do You Believe Vaccines Cause Autism? originally appeared on About.com Autism on Monday, November 29th, 2010 at 08:12:21.

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What The Government Says About Chiropractic

SOURCE: From the U.S. Bureau of Labor Statistics Occupational Outlook Handbook, 2010-11

Chiropractors, also known as doctors of chiropractic or chiropractic physicians, diagnose and treat patients with health problems of the musculoskeletal system and treat the effects of those problems on the nervous system and on general health. Many chiropractic treatments deal specifically with the spine and the manipulation of the spine. Chiropractic is based on the principle that spinal joint misalignments interfere with the nervous system and can result in lower resistance to disease and many different conditions of diminished health.

The chiropractic approach to healthcare focuses on the patient’s overall health. Chiropractors provide natural, drugless, nonsurgical health treatments, relying on the body’s inherent recuperative abilities. They also recognize that many factors affect health, including exercise, diet, rest, environment, and heredity. Chiropractors recommend changes in lifestyle that affect those factors. In some situations, chiropractors refer patients to or consult with other health practitioners.

Like other health practitioners, chiropractors follow a standard routine to get information needed to diagnose and treat patients. They take the patient’s health history; conduct physical, neurological, and orthopedic examinations; and may order laboratory tests. X rays and other diagnostic images are important tools because of the chiropractor’s emphasis on the spine and its proper function. Chiropractors also analyze the patient’s posture and spine using a specialized technique. For patients whose health problems can be traced to the musculoskeletal system, chiropractors manually adjust the spinal column.

Some chiropractors use additional procedures in their practices, including therapies using heat, water, light, massage, ultrasound, electric currents, and acupuncture . They may apply supports such as straps, tape, braces, or shoe inserts. Chiropractors often counsel patients about health concepts such as nutrition, exercise, changes in lifestyle, and stress management, but chiropractors do not prescribe drugs or perform surgery.

In addition to general chiropractic practice, some chiropractors specialize in sports injuries, neurology, orthopedics, pediatrics, nutrition, internal disorders, or diagnostic imaging.

Many chiropractors are solo or group practitioners who also have the administrative responsibilities of running a practice. In larger offices, chiropractors delegate these tasks to office managers and chiropractic assistants. Chiropractors in private practice are responsible for developing a patient base, hiring employees, and keeping records.

Education and training. In 2009, 16 chiropractic programs in the United States were accredited by the Council on Chiropractic Education. Applicants must have at least 90 semester hours of undergraduate study leading toward a bachelor’s degree, including courses in English, the social sciences or humanities, organic and inorganic chemistry, biology, physics, and psychology. Many applicants have a bachelor’s degree, which may eventually become the minimum entry requirement. Several chiropractic colleges offer prechiropractic study, as well as a bachelor’s degree program. Recognition of prechiropractic education offered by chiropractic colleges varies among the States.

Chiropractic programs require a minimum of 4,200 hours of combined classroom, laboratory, and clinical experience. During the first 2 years, most chiropractic programs emphasize classroom and laboratory work in sciences such as anatomy, physiology, public health, microbiology, pathology, and biochemistry. The last 2 years focus on courses in manipulation and spinal adjustment and provide clinical experience in physical and laboratory diagnosis, neurology, orthopedics, geriatrics, physiotherapy, and nutrition. Chiropractic programs and institutions grant the degree of Doctor of Chiropractic (D.C.).

Chiropractic colleges also offer postdoctoral training in orthopedics, neurology, sports injuries, nutrition, rehabilitation, radiology, industrial consulting, family practice, pediatrics, and applied chiropractic sciences. Once such training is complete, chiropractors may take specialty exams leading to “diplomate” status in a given specialty. Exams are administered by chiropractic specialty boards.

Share Thanksgiving Successes, Frustrations

Is Thanksgiving going smoothly for you and your child with autism?  Or are you running into brick walls with relatives and friends who just don't get it?

Rather than commenting on this post, share your ideas, resources and frustrations here:

Share Thanksgiving Successes, Frustrations originally appeared on About.com Autism on Thursday, November 25th, 2010 at 07:39:32.

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Happy Thanksgiving!


You may also enjoy this Thanksgiving Debate between Robert De Niro and Billy Crystal

Help an Uncle Apologize to His Autistic Nephew

A reader asks:

My nephew is 6 years old and has Asperger syndrome.  He is a very smart little boy, but has difficulty understanding emotions and takes things very literally.  Today he was playing with my mother's pet cat.  The cat, being a cat, got tired of playing and tried to leave.  My nephew continued to become angry with the cat for trying to leave and kept trying to make him stay on the table by smashing him down.  When he gets too rough with the cat, I intervene and take the cat out of the situation by picking him up and putting him in the laundry room until both have cooled down. This time he held on to the cat. I tried to pull his hand away and hit him in the nose with my watch.  The look of fear he gave me made my heart just about stop.  I have never felt so bad in my entire life as I did at this moment.  He clearly thought that I had hit him for holding on to the cat and not letting him go.  He threw a tantrum and had tears, which he rarely does even when he is hurt or sad.  This boy hardly ever cries.  Additionally I am pretty much his favorite uncle as I read to him daily, listen to his stories and play games with him.  Just earlier today we were laughing and making up our own stories as we read one of his books.

I need to know how to explain to him that I am sorry for what happened.  I know he will not forget this incident as his memory is remarkable.  I just want to help him understand that I did not intend on hitting him and that this was an accident.  I do not know if he will understand my apology or if its even a good idea to apologize.  This is something that I just do not understand or know where to begin on helping him understand my actions.


Please help me try to make things more clear for both him and myself.

Can you help?

Help an Uncle Apologize to His Autistic Nephew originally appeared on About.com Autism on Tuesday, November 23rd, 2010 at 23:05:01.

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Thanks to Tom, My Kiddo on the Autism Spectrum

Well, it's Thanksgiving again.  Tom has announced that he will NOT eat turkey, and is NOT excited about spending the day with one particular cousin who makes him crazy.  But we're going anyway, and it'll be fine.  Tom will manage, despite non-favorite foods, and despite a (genuinely) annoying cousin.

I'm thankful for that.

I'm also thankful for -

  • The double rainbow that Tom saw first
  • The amazing contraptions that Tom is creating from bits of old Lego sets - AND his new ability to build from a diagram
  • Tom's newfound understanding of how children's stories share important themes that he can relate to
  • My boy's empathy for and devotion to his sister, parents, and pets
  • Tom's willingness to try and try again, and - finally - meet his goals
  • His new and emerging ability to strike up and maintain conversations with total strangers

It's all good.

How about you?

Thanks to Tom, My Kiddo on the Autism Spectrum originally appeared on About.com Autism on Tuesday, November 23rd, 2010 at 15:37:49.

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Poll: Rate Your Level of Marital Stress

 

Poll: Rate Your Level of Marital Stress originally appeared on About.com ADD / ADHD on Monday, November 22nd, 2010 at 21:46:53.

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Giving Thanks!

It is this time of year when we are reminded to be thankful for all we have in our lives. We are more aware of the importance of expressing our warm gratitude to friends and loved ones. Now and especially throughout the year whenever life seems topsy turvy, take some time to think about all the things that make you feel happy and appreciative. Jot down a quick list and include both the small things like chocolate kisses and the big things like the people who love you.

"Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow."
--Melody Beattie

If you'd like to share about some of things for which you are grateful or if you'd like to read responses from others, please do so at the link below.

I AM THANKFUL FOR...

Photo © Microsoft

Giving Thanks! originally appeared on About.com ADD / ADHD on Monday, November 22nd, 2010 at 21:19:13.

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An Interview with Brigadier General Becky Halstead

Our deepest appreciation to Carl S. Cleveland III, DC for conducting this in-depth Interview

How were you introduced to chiropractic and how has it helped you?

My dad introduced me to chiropractic on one of my visits home, one of my leaves. He could start to see that I was wearing physically. My dad had arthritis, so he often would go down to see the chiropractor in our town. Actually, our town doesn’t even have traffic lights, so it was the next town over, in Owego, New York. He said, “I think you ought to go down and see Dr. Perestam. I think he could make you feel better.” And so I did, and he was absolutely right. My very first visit to the chiropractor was awesome and so has every subsequent visit to the chiropractor. I always leave feeling better. I tell people it’s like I can breathe better. I feel taller. So I got a taste of how wonderful that care is. Unfortunately, though, I only went home once or twice a year. Every time I went home, people would give up their appointments. They’d go, “Do you need to go to the chiropractor? I’ll give you my appointment.” So I was always fit in.

But in the military, there were no chiropractors at the treatment facility, so it was not readily accessible and available to me. So although I knew that it would help, I did not have sustained chiropractic care until after I retired. And it’s helped me amazingly! I don’t even know how to describe what my situation was two years ago when I retired, compared to today. I just physically was at the end of my rope and that’s why I retired, with chronic fibromyalgia. I would push and push and push all day long. When I’d get home, I would just curl up in a ball. My skin hurt, my body ached, a thousand pins in my cheeks and my lips and my tongue. What the military did for me was to give me drugs, pain medicine and sleep medicine. I had every drug imaginable. And although that helped maybe curb it a little bit, it caused so many other horrible reactions, in my esophagus, my stomach, ulcers. It’s a spiral. What helps you also hurts you in that regard, I think.

And so at 49, I’m sitting there taking a dozen prescribed drugs – every three hours, every four hours, every six hours. And I just went, “This is crazy.” I plan on living to 100. In my family we do live to 100, so I’ve got to figure out another way. So I sought chiropractic as a routine care. Now, two years later, I take no prescribed drugs. Zero. I go to the chiropractor about every two to three weeks, depending on my travel schedule. And I can take a shower without the water hurting my skin. My skin’s not on fire now. I mean, I have fibromyalgia, but it’s not chronic. And I know so much more now about how to deal with that. And chiropractic is a huge part of the equation.

How long were you under chiropractic care before you began to see results?

Every time I go to the chiropractor, I always have immediate relief. But I would say that I had sustained chiropractic care for maybe three months, while slowly taking myself off all the prescribed drugs. Within a year, I was pretty much off all the prescribed drugs. An important part of chiropractic is that the doctor of chiropractic brings you into the relationship. That doctor-patient relationship is unlike what I had with any other doctor out there in the military, and I saw a fair share of doctors, from rheumatologists to neurologists.

I think that’s the reason you see results even more quickly, because DCs listen. They want you to be part of the solution and you are part of the solution. Nobody knows your body like you. I think that was extremely helpful. And my doctor of chiropractic, Carol Ann Malizia, introduced me to the importance of things like understanding nutrition. There are no left and right aiming stakes (as we call them in the military), no boundaries for the chiropractor in terms of how it all comes together, and I like that as well. Because in the military, if I started out with a rheumatologist on the 9th floor, they get to a certain point where they can’t do any more and they send you to a neurologist on the 8th floor, and they get to a certain point where they can’t do anything, so they send you to another doctor. Well, that’s a bit crazy. Whereas what I find with the doctor of chiropractic is that they have the talented minds and hands and hearts to understand the whole body and how it all works together. And take somebody like me, who’s an ordinary farm girl who spent her life in the military, and it helps me understand that better. To me, that’s amazing.

Today, as you know, there are doctors of chiropractic practicing some 60 military bases and at approximately 25 VA hospitals. We know that members of the military are very pleased with these services because we hear their comments about their response to chiropractic care. Having been a leader and a manager in the military, how do you see chiropractic – when positioned on military bases – influencing the quality of services that our personnel in the military provide?

I think it can have a direct, positive impact on readiness. Readiness is a key watchword for the military, especially the Army. The Army’s mission is to be “trained and ready to fight and win our nation’s wars.” Readiness is about the individual being ready physically, mentally, emotionally, and spiritually. Chiropractic plays into that, I believe, exponentially, because the chiropractor sees the whole person. If more of our leadership would understand, I am convinced that you would have a reduction in the use of prescribed drugs. Prescribed drugs right now are killing our military. Pick up any military newspaper and you will see that this is a war that we are really struggling with.

We are a nation at war, a military at war, and so a quick fix is prescribed drugs. Unfortunately, a doctor in Iraq will prescribe a drug, and then you’ll go back home on vacation and another doctor will prescribe another drug. They may be in direct conflict with each other and nobody’s paying attention. I don’t mean that derogatorily but it is true. I mean, I am a general and I suffered through that. Nobody is really talking to each other, so I’m getting all of these prescribed drugs. And unless I am reading all of the side effects and asking questions about whether it is safe to take this one with this one, I might not know. I think it is leading to a lot of our problems with suicide, drug overdose, and drug dependency. Physical pain leads to emotional burdens; emotional burdens lead to physical burdens. They’re tied together. So in a time of war, this has just escalated.

As a leader, my position now (knowing even more than when I was in the military), is that there is a role for the chiropractor in being a combat multiplier for our units. In my vision, I can see, 20 years from now, positioned next to the brigade surgeon in our brigade combat team, a chiropractor. If I had known when I was in Iraq that chiropractic care was among our benefits, that in 2000 Congress had passed a law that said chiropractic care is a benefit for all military, I would personally have gone out to all of my Reserve and National Guard units and done a survey to find out if any of them were chiropractors, with a uniform on but being something else, like a supply officer or whatever. If I had found any of them that were chiropractors, I’d have said, “Okay, we’re going to call back home, ship your table over and set up shop. We’ll find somebody else to be the supply officer, but you’re unique and I need you as a chiropractor helping our soldiers.” I’d have set up shop for them had I known, but I didn’t know.

What strategy should the leadership of the chiropractic profession take to help lead the decision makers in the military to choose chiropractic, to recognize the cost-effective benefits of how this can serve military personnel?

There has to be a strategy. For me, I think it involves finding personal friends that are still in the military that have used or are using a chiropractor. Testimonials are huge. I think this is where I’ve been value-added, in that there are a lot of senior officers and soldiers that know me and we have a relationship. They see how chiropractic has helped and that immediately strikes up an interest for them to find out more about chiropractic care. So that’s on a personal level. At the strategic level, it’s almost simple. Congress passed it as a law and told DOD to make it happen. DOD is not making it happen. So if I, as a General Officer, was told that I have a mission to do something and ten years later I’m only doing 25 percent of my mission, that would be considered a failure. I mean, nobody would put up with it.

So I think that somehow we’ve got to get in with the leadership of the military and say, “This is a benefit and it’s not happening. How can we take the leadership of chiropractic and the leadership of the military, come to the table, and help you to develop a strategy to resource this?” Right down to the method, the process, by which we get patients to the chiropractor. In the military, it’s by referral and I hate that it’s a referral. Because anybody that uses a chiropractor knows that they don’t need to go to another doctor to be referred. But that’s the way the military is organized. So we’re not even leveraging the chiropractors we have the way we should. There’s a waiting list for every chiropractor out there in the VA and DOD, 90 to 120 days to see the chiropractor. That’s just horrible. And the reason that the waiting list is so long is that Tricare doesn’t cover it. It’s absurd that Tricare doesn’t cover chiropractic care. If I can’t get it at my treatment facility and Tricare doesn’t give it to me, it’s a benefit on a piece of paper only. It’s not worthless but it’s not beneficial.

I think Congress took the first step. I understand resources. I understand managing budgets and managing people. And I understand that just because Congress passed a law doesn’t mean that it automatically happens. The military has to figure out how it’s going to happen. There are several axes to the strategy. One is, how do we demonstrate to the leadership that this will improve readiness? I think the only way to do that is to start gathering those testimonials. Start getting Sgt. Allen at the VA center in Connecticut, who says, “For two years I went to a PT and in one visit to a chiropractor, I feel so much better. There’s no doubt I could put my rucksack back on today and go out and do those patrols in Baghdad. And oh, by the way, if we had chiropractors out front, at the tip of the spear where we need them most, where kids are out there doing patrols, can you imagine how much better we could do our mission?”

Yes, I can imagine that. Not only can I imagine it but I believe we should resource chiropractors forward on the battlefield and then work our way back. How do we get the leadership to imagine that? One aspect is testimonials. Another is somehow to be able to estimate the cost-benefit. That fewer soldiers will be taking drugs. It doesn’t take a rocket scientist to figure out that that would automatically be a better deal. And we wouldn’t lose people from the military. Like myself. I mean, I had to retire. That’s 27 years of experience walking out the door. That’s almost criminal. So I see a couple of axes of advance here. And we’ve got to go even further out with our vision and show that if we put chiropractors in the right place, then we have the potential to improve our mission readiness.

You mentioned Tricare. Could you please explain that?

Tricare is our insurance in the military. For example, if I go to my local [military] treatment facility and the doctor looks in my eyes, sees something that’s not good, and says I need to see a neurologist, then he would send me off post because we can’t afford to have a neurologist at every treatment facility. That’s why we have Tricare. You get the referral to go to the neurologist out there in the civilian economy and Tricare covers it. Really, up until the point where I hit chiropractic I thought Tricare covered everything I couldn’t get in the military. It wasn’t until I got involved with the Foundation for Chiropractic Progress that I realized it doesn’t. That’s when I saw the House resolution bill that would force Tricare to cover chiropractic. And the House passed it this year. Unfortunately, there wasn’t a companion bill in the Senate so we are starting over again next year. We can’t give up, we need to do this.

It has been reported that musculoskeletal afflictions are the most common injury from the war with our veterans as they present at VA hospitals. Of course, you know chiropractic focuses on the musculoskeletal system.

Absolutely.

What are your thoughts on that? I know you have spoken about wearing a heavy backpack as soldiers do when they’re out in the field.

I am not surprised at all that musculoskeletal is the number one problem. We have no days off. When you’re in combat it’s seven days a week, 24 hours a day. So if you get an email from a friend that says to have a nice weekend – there’s no such thing as a weekend. You have to be in your gear constantly, because even on base it’s a dangerous place, with mortars and rockets. So you’re constantly wearing very heavy gear. It’s Kevlar. These are metal plates that are in your, to use an older term, flak-vest. Your helmet’s heavy. I wish I had weighed my helmet before leaving the Army. I still have my steel pot from the 1970s. That’s what they wore in Vietnam. I actually bought that one, so I have it. But you’re talking about 8 to 12 pounds of a helmet that’s weighing on your neck.

For someone like me, who is 110 pounds, my gear could weigh as much as 60 pounds. And that’s not with a full rucksack. If you take the infantry, the MPs, and all the other soldiers who are doing foot patrols, they are easily carrying 80 to 100, and in some cases even 120 pounds. That includes ammunition, weapons, batteries for their radios, etc. And they’re changing altitudes. In Afghanistan, you can change thousands of feet in altitude. You start out at Bagram in the valley between the mountains and you get on a helicopter and go up to the top of the mountain. You’re changing in altitude and changing in temperatures. It could change 50 degrees. So all that physical trauma and stress, the weight, the emotion (you can just imagine the emotion of being dropped off on top of a mountain in Afghanistan), the weight of all those things is a huge burden on our bodies.

Read the rest of the Full-Text Interview Now

Explaining ADHD to Your Child

The first time your child hears about ADHD may be when you sit down together with his (or her) doctor following an ADHD evaluation. It can be hard to take in all the information given during this meeting, and both you and your child may have lots of questions.

Learning about ADHD is an ongoing process, and the positive ways in which you communicate and relate with your child will enable him to feel free coming to you for support and answers.

Read More About Talking About ADHD

Jupiterimages© ComstockImages

Explaining ADHD to Your Child originally appeared on About.com ADD / ADHD on Monday, November 22nd, 2010 at 12:47:08.

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Addressing Autism’s Challenges from the Bottom Up

In perusing today's autism news, I came across a blog post by Ginger Taylor of Adventures in Autism.  Her piece, "Why Conservatives Don't Get Autism," is intended to be a counterpoint to an earlier Age of Autism blog on why "Progressives Don't Get Autism."  Ginger, from what I can tell, is herself a conservative; the post is intriguingly self-reflective.

Today's blog post was rather long, and addressed a number of issues.  One of them really grabbed me as worthy of discussion.  Ginger, in the course of her piece, makes this statement:

Our autism community has discovered that ultimate solutions don't come from the top down, but the bottom up.

Whether your version of an "ultimate solution" focuses on prevention and cure, or on acceptance and support, you may feel - as I do - that Ginger is absolutely right on this point.

In the United States, we are loaded with institutions which, in theory, are set up specifically to address the issues of autism.  From government agencies such as the National Institutes of Health and the Department of Health and Human Services to state-run programs to regional school districts, we're all about providing resources.  Sometimes, these institutions really do work, in that children on the autism spectrum are provided with at least some resources and services they would not have received otherwise.  When our son was very young, for example, he received speech, occupational and physical therapy free of charge, along with 1:1 support in his preschool setting.

In the long run, though, the institutions don't seem to "get" autism very well at all.  So far, we don't have an official understanding of what autism spectrum disorders are; what's most likely to cause the disorders; or which treatments (if any) are most appropriate for any given child.   Education for a child with autism is conceived of as behavioral rather than academic, and very few districts are actually able to provide a solid, meaningful education for their autistic students.  Precious few resources are available for adults on the spectrum, and many families simply fend for themselves.

What's the solution to all this?

Quite simply, the solution has come, and will continue to come, from the bottom up.  It comes in the form of schools designed and built by parents and therapists who see a better way to engage, support and teach children who learn differently.  It comes in the form of therapists who take parents' needs seriously and build web-based techniques for consulting, training and support parent/therapists wherever they may live.  It comes in the form of doctors whose frustrations on behalf of their patients drive them to write books, create resources, and support community projects for families living with autism.  It even comes in the form of individual celebrities whose personal or societal concerns lead them to create foundations, programs, scholarships and grants to help families do their best for their children and themselves.

Do you know of a "bottom-up" program, project or resource for families living with autism?  Please share!

Addressing Autism's Challenges from the Bottom Up originally appeared on About.com Autism on Monday, November 22nd, 2010 at 08:50:03.

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What’s the Coolest Thing About Your Child with Autism?

On the Autism at About Dot Com Facebook page, I post quick questions for readers who don't have a lot of time, but do have a lot of insights, thoughts and ideas.  Just for fun, here's a Facebook-style question for About.com readers.

What's the coolest thing about your child with autism?

No pressure - just answer in a few words as you have a moment.



What's the Coolest Thing About Your Child with Autism? originally appeared on About.com Autism on Saturday, November 20th, 2010 at 22:35:10.

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Alteration of Motion Segment Integrity

Source: Dynamic Chiropractic ~ 11-18-2010

By Jeffrey Cronk, DC, CICE

Sometimes the internal discourse that is common in our profession seems to get in the way of our acceptance of real help so that we can expand our profession and better serve our patients. Alteration of motion segment integrity (AOMSI) is a significant gift from the AMA that allows us to methodically locate, substantiate and objectively prove the severity of the spinal subluxation. Of course, it comes as a gift only as long as we handle it with a high level of responsibility.

Alteration of motion segment integrity is determined by exact mensuration procedure published in the AMA Guides to the Evaluation of Permanent Impairment. It is a spinal subluxation that can be objectively identified with a high degree of accuracy, especially when one acknowledges the advancements that have occurred in assessment of stress imaging (X-ray, DMX).

Please remember that some of the most significant advancements in functional radiology assessment came from information gained from our profession’s very first federal research grant, awarded in the mid 1970s. It was University of Colorado scientist Chung Ha Suh, PhD, who secured the first chiropractic funding from the National Institutes of Health (NS 12226 01A1). Suh’s main areas of research focused on the development of computerized, kinematic models of the spine and three-dimensional, distortion-free X-ray analysis. This research improved our ability to more accurately measure articular deformations such as AOMSI.

Historically, AOMSI first showed up in writing in June 1993, when the AMA developed the injury model of spinal assessment and listed the findings and criteria in its new DRE (Diagnosis Related Estimate) categories. This was the first open acknowledgment from the AMA that spinal subluxation’s could cause significant, and perhaps permanent, reductions in a patient’s health status. This meant that the AMA had validated what we had been stating for a very long time. Ironically, this validation came some six years after the resolution of the Wilk case.

Some in our profession understood this “open acknowledgement” for what it really was and made sure AOMSI was included in the first chiropractic practice guidelines to be published in the federal government’s National Guideline Clearinghouse Project (NGC). They had the foresight to make sure, with strong peer review, that AOMSI was within the scope of chiropractic management and listed as a component of the vertebral (spinal) subluxation complex. [1] These guidelines were first published in 1998 and have had two successful and very helpful revisions, still listed in the NGC today.

The 1990s seemed to be the explosion years for “evidence-based health care.” The lynchpin was guidelines. Inherent in guidelines is that fact that they are objective. Inherent in the term objective is the ability to verify the presence of; anyone can read and verify what is in a guideline, which is why they are so important. Guidelines build consensus, which builds group solidarity of belief or sentiment. We often see that guidelines in one area are cited for the foundation of other guidelines. This guideline-building phenomenon has led to further validation of the significance of AOMSI findings and, if we acknowledge and apply it, leads to further credibility of our profession as the leaders; the body with the longest and highest level of experience in spinal subluxation management.

Chiropractic was not the only profession building guidelines. All providers were engaging in this activity, including the sports medicine specialists. These providers could probably care less about impairment ratings, disability ratings, or the often irrational medical-legal environment of our modern day. These providers were building guidelines to handle the health and safety of athletes who received an injury or had a condition that could affect their ability to safely participate in their chosen athletic activity. They needed to develop guidelines (consensus) as to what to do with athletes when they sustained certain types of injuries, i.e., injuries to the appendages, head injuries, brain injuries and yes, spinal injuries.

These guidelines openly acknowledged that spinal subluxations due to spinal ligament damage can be serious and included them. AOMSI findings now became either a relative or an absolute contraindication to return to contact sports, which makes complete sense. Why would you put an athlete with this level of spinal ligamentous injury right back into full-contact sports, without stabilizing the injury and allowing it to heal? These guidelines provided further consensus as to the significance of the findings of AOMSI. [2-6] This fact seems to go unnoticed and unacknowledged by some in our profession.

Common sense tells us that patients who have significant spinal subluxations from acute ligament trauma need to be managed by providers who understand the significance of the condition they are treating. All patients deserve this level of professionalism, as their future health status and safety depend on it.

A single, 28-year-old bank loan officer has been under your care for an auto-collision injury he received three weeks ago. Over the weekend, he played in a senior men’s league rugby match, received a routine hit and sustained a severe cervical spinal cord injury. Tragically, his life is now permanently altered. His parents receive a phone call that none of us ever wants to receive.

How will you explain that you, as a spinal specialist, did not take his auto-collision injuries seriously enough to work them up to the highest level of professionalism established today? How do you explain that you took stress X-rays (flexion-extension) of the area, but you did not seek to have the highest level of functional radiology available to measure for AOMSI? How do you explain that there were two levels of AOMSI present and you did not apprise their son about the risk of participation in contact sports just 20 days after receiving the earlier injury? How do we as a profession explain that? How do we explain to our medical counterparts that we are the experts here?

The chiropractic profession established the technology to assist with accurately and reliably locating AOMSI. The AMA gave it a name and credibility, and established its significance. It is now time for our profession to fully endorse and incorporate the evaluation of AOMSI in every one of our patients who has suffered a traumatic injury to their spine.

Please also refer to:
Accurate Prognosis in Personal-Injury Cases Using George’s Line

References:

1. Council on Chiropractic Practice Clinical Practice Guideline #1: Vertebral Subluxation in Chiropractic Practice. 2003 edition, page 17.
http://www.ccp-guidelines.org/guideline-2003.pdf

2. “Sports Injuries.” University of Southern California Center for Spinal Surgery.
http://www.uscspine.com/conditions/sports-injuries.cfm

3. “Cervical Ligamentous Instability.”
http://www.fpnotebook.com/Ortho/C-Spine/CrvclLgmntsInstblty.htm

4. “C Spine-Related Contraindications for Participation in Contact Sports.”
Congress of Neurological Surgeons: NeuroWiki.

5. “Cervical Spine Injuries and the Return to Football”
Table 3. Sports Health: A Multidisciplinary Approach, 2009 (Sep); 1 (5)

6. Parker RA. “Cervical Spine Injuries in Athletes.”
http://www.aoasm.org/handouts/CERVICAL_SPINE.pdf