Thinking About Starting an ADHD Parent Support Group?

When your child has ADHD, the stressors and the uncertainties around parenting issues can quickly grow, leaving a parent to feel unsure, frustrated, overwhelmed -- and sometimes quite alone. Connecting with others who understand and have experienced the same challenges can help. Such a group can provide not only that important sense of community and support, but also accurate information and education about ADHD and how to best manage it.

But what if there is no such group in your area?

How about starting one? Learn how one group of parents in Greensboro, North Carolina did.

Starting an ADHD Parent Support Group: Lessons from Greensboro, N.C.

Photo © ADHD Greensboro

Thinking About Starting an ADHD Parent Support Group? originally appeared on About.com ADD / ADHD on Friday, September 30th, 2011 at 21:49:22.

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A Farewell to the About.com Autism Site

Well, it's been about five and a half years.

When I started on this site, my son was just a little guy.

At that time, I wanted to know all about autism spectrum disorders.  And over the years, I have learned!  The wealth of information I collected - all I ever wanted to know, and more! - will still be here, on these web pages, for a while to come.  That's because any site guide starting out today to cover topics in autism would have to start almost from scratch in just a year and a half, when the new diagnostic manual is published.  At that time, much of what I've written about - Asperger syndrome, PDD-NOS, speech issues related to autism and more - will simply be...  obsolete.

Sadly, while I've certainly learned a great deal about autism over the past few years, I've also learned that there is no consensus - and likely never will be - on what autism "really" is, what causes it, what treats it, or why any individual person has the symptoms of what we presently call autism spectrum disorder.  This void of information has been energetically filled by the voices of parents and others who have made a life out of anger and/or the willingness of desperate people to believe that something - anything - could make things "normal" after the birth of a child with autism.

I've also learned that it's easy to become a target for saying those fighting words: "I don't know what causes autism, but I suspect there are many causes and many autisms."  I've been accused (in a negative way) of "being Switzerland," something that I certainly don't regret.  This site has been a "bully pulpit" for people on all side of the many issues surrounding autism, and despite my "Switzerland-like" approach to moderation, it has become, on occasion, a battleground.

This site is medically reviewed, but I am not a doctor.  I'm a mom and writer.  I like to think of myself, too, as a critical thinker.  As a final blog on this site (and you will be able to find me again, if you're interested, on my Authentic Inclusion site!), I'd like to just give readers some of the insights with which I leave this particular gig.

1. The goal of autism therapies and treatments, in my opinion, should be to help the individual with autism to become as fully human as they can be.  Being "fully human" means so much more than being typical.  It means learning, loving, creating, imagining, laughing, playing, singing, being silly, having fun.   The idea of valuing a human being on the basis of whether he is "indistinguishable from his typical peers" is just plain terrifying.

2.  There are many therapies out there, but none is a "cure for autism."  Not even ABA.  I recommend picking the therapies that work for you, your child, your family and your pocket book.  We specifically stayed away from ABA because, quite frankly, when it's done poorly (and it often is) it is dehumanizing and disrespectful.  Worse, it is focused entirely upon behavior, and not upon the human being that is your child.  If you MUST go with ABA, choose your therapist very carefully.  No matter what, PLEASE look more closely at Floortime and RDI.  These therapies are all about helping your child to become the person he or she truly is, and on helping your child discover his emotional self, her creative self, his personality, her passions!

3.  Life is for living.  Even (and perhaps especially) when your child is autistic.  PLEASE get out there, have fun, enjoy life, enjoy your kids, don't spend your life, love and treasure exclusively on therapies.  Go fishing.  Go swimming.  Take a hike.  Volunteer.  Sing.  Play.  LIVE!  And while you're out there, look for ways to help your child with autism to join in the fun.  Use your imagination, and help your child with autism to use hers.  Introduce your child to his world, and to the people in his world.  Help them to get to know and care about your child.  It's the community that, in the long run, will make or break your efforts to help your child succeed.

4.  There are plenty of self-serving nuts out there trying their best to sell you Very Expensive Snake Oil.  But that says nothing whatever about the impact one way or another of vaccines on children, or about the efficacy of diet, nutritional supplements, sensory integration or other alternative therapies on autism.  We DON'T KNOW what caused your child's autism, we don't know what will cure it, and we probably will never know.  It is almost certainly the case that people on both sides of "the biomed debate" are right - and wrong.

5.  Gold-plated, double-blind, controlled, expensive studies may tell you far less than you think they should.

6.  This so-called "autism community" includes some very scary people.  Beware of these people, and try not to allow them to influence the decisions you make on behalf of your children.  When sites like Age of Autism LITERALLY photoshop images of horns and tails onto people with whom they disagree, you can make a shrewd guess that they have an agenda that they are trying to push.

7.  Many people on the autism spectrum are amazing human beings.  Many are not.  In fact, people with autism are as varied as the rest of the human race.  "Neurodiversity" - the idea that it's ok to be who you are - is a wonderful idea.  If you are a decent human being.  If, in fact, you're not, then no amount of social skills training is going to turn you into Mother Theresa.

So...  some of you may be wondering where I'm headed from here.  I should say, first, that autism is not my only focus as a writer!  I'm an educational writer with more than a dozen books to my credit (including just one about autism).  That said, though, I will tell you that I will be contributing to a new site called Autism After 16.  I'll be consulting on "authentic inclusion" with museums and other community organizations.  I'll be blogging on my own site, Authentic Inclusion.  And I'll be continuing to help my son, Tom (and my daughter, Sara) to become all they can be!

Note: as this is the last blog post I'm writing for this site, I have closed the post to comments.  To those of you who enjoyed reading my blogs, thanks so much for the kind words!


A Farewell to the About.com Autism Site originally appeared on About.com Autism on Wednesday, September 28th, 2011 at 13:56:23.

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A Farewell to the About.com Autism Site

Well, it's been about five and a half years.

When I started on this site, my son was just a little guy.

At that time, I wanted to know all about autism spectrum disorders.  And over the years, I have learned!  The wealth of information I collected - all I ever wanted to know, and more! - will still be here, on these web pages, for a while to come.  That's because any site guide starting out today to cover topics in autism would have to start almost from scratch in just a year and a half, when the new diagnostic manual is published.  At that time, much of what I've written about - Asperger syndrome, PDD-NOS, speech issues related to autism and more - will simply be...  obsolete.

Sadly, while I've certainly learned a great deal about autism over the past few years, I've also learned that there is no consensus - and likely never will be - on what autism "really" is, what causes it, what treats it, or why any individual person has the symptoms of what we presently call autism spectrum disorder.  This void of information has been energetically filled by the voices of parents and others who have made a life out of anger and/or the willingness of desperate people to believe that something - anything - could make things "normal" after the birth of a child with autism.

I've also learned that it's easy to become a target for saying those fighting words: "I don't know what causes autism, but I suspect there are many causes and many autisms."  I've been accused (in a negative way) of "being Switzerland," something that I certainly don't regret.  This site has been a "bully pulpit" for people on all side of the many issues surrounding autism, and despite my "Switzerland-like" approach to moderation, it has become, on occasion, a battleground.

This site is medically reviewed, but I am not a doctor.  I'm a mom and writer.  I like to think of myself, too, as a critical thinker.  As a final blog on this site (and you will be able to find me again, if you're interested, on my Authentic Inclusion site!), I'd like to just give readers some of the insights with which I leave this particular gig.

1. The goal of autism therapies and treatments, in my opinion, should be to help the individual with autism to become as fully human as they can be.  Being "fully human" means so much more than being typical.  It means learning, loving, creating, imagining, laughing, playing, singing, being silly, having fun.   The idea of valuing a human being on the basis of whether he is "indistinguishable from his typical peers" is just plain terrifying.

2.  There are many therapies out there, but none is a "cure for autism."  Not even ABA.  I recommend picking the therapies that work for you, your child, your family and your pocket book.  We specifically stayed away from ABA because, quite frankly, when it's done poorly (and it often is) it is dehumanizing and disrespectful.  Worse, it is focused entirely upon behavior, and not upon the human being that is your child.  If you MUST go with ABA, choose your therapist very carefully.  No matter what, PLEASE look more closely at Floortime and RDI.  These therapies are all about helping your child to become the person he or she truly is, and on helping your child discover his emotional self, her creative self, his personality, her passions!

3.  Life is for living.  Even (and perhaps especially) when your child is autistic.  PLEASE get out there, have fun, enjoy life, enjoy your kids, don't spend your life, love and treasure exclusively on therapies.  Go fishing.  Go swimming.  Take a hike.  Volunteer.  Sing.  Play.  LIVE!  And while you're out there, look for ways to help your child with autism to join in the fun.  Use your imagination, and help your child with autism to use hers.  Introduce your child to his world, and to the people in his world.  Help them to get to know and care about your child.  It's the community that, in the long run, will make or break your efforts to help your child succeed.

4.  There are plenty of self-serving nuts out there trying their best to sell you Very Expensive Snake Oil.  But that says nothing whatever about the impact one way or another of vaccines on children, or about the efficacy of diet, nutritional supplements, sensory integration or other alternative therapies on autism.  We DON'T KNOW what caused your child's autism, we don't know what will cure it, and we probably will never know.  It is almost certainly the case that people on both sides of "the biomed debate" are right - and wrong.

5.  Gold-plated, double-blind, controlled, expensive studies may tell you far less than you think they should.

6.  This so-called "autism community" includes some very scary people.  Beware of these people, and try not to allow them to influence the decisions you make on behalf of your children.  When sites like Age of Autism LITERALLY photoshop images of horns and tails onto people with whom they disagree, you can make a shrewd guess that they have an agenda that they are trying to push.

7.  Many people on the autism spectrum are amazing human beings.  Many are not.  In fact, people with autism are as varied as the rest of the human race.  "Neurodiversity" - the idea that it's ok to be who you are - is a wonderful idea.  If you are a decent human being.  If, in fact, you're not, then no amount of social skills training is going to turn you into Mother Theresa.

So...  some of you may be wondering where I'm headed from here.  I should say, first, that autism is not my only focus as a writer!  I'm an educational writer with more than a dozen books to my credit (including just one about autism).  That said, though, I will tell you that I will be contributing to a new site called Autism After 16.  I'll be consulting on "authentic inclusion" with museums and other community organizations.  I'll be blogging on my own site, Authentic Inclusion.  And I'll be continuing to help my son, Tom (and my daughter, Sara) to become all they can be!

Note: as this is the last blog post I'm writing for this site, I have closed the post to comments.  To those of you who enjoyed reading my blogs, thanks so much for the kind words!


A Farewell to the About.com Autism Site originally appeared on About.com Autism on Wednesday, September 28th, 2011 at 13:56:23.

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Chiropractic Management for Veterans with Neck Pain: A Retrospective Study of Clinical Outcomes

Chiro.Org Blog: The purpose of this study was to report demographic characteristics, chiropractic treatment methods and frequency, and clinical outcomes for chiropractic management of neck pain in a sample of veteran patients.

Dump Subluxation?   Give Me a Break!

Chiro.Org Blog: What causes subluxation? Exactly how does it cause nerve interference? What kinds of adjustments work the best, and why? How do adjustments work, anyway? Does any of that really matter in practice? What should our science address, and how should we do it with such limited resources? Why are there so many chiropractic techniques out there, each with its own method of measuring a subluxation? The discussion at the conference was simply more formal, more academic and more public, as it should be. Professional progress demands answers to these questions.

Poll: Ever Attended an ADHD Support Group?

 

Poll: Ever Attended an ADHD Support Group? originally appeared on About.com ADD / ADHD on Saturday, September 24th, 2011 at 14:56:18.

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Writing Problems Common for Students With ADHD

People may view writing as an automatic, natural process; however, for many students with ADHD it can be quite overwhelming. Research published in the September 2011 issue of Pediatrics finds that kids with ADHD are five times more likely to have difficulties with written language than are kids without ADHD, regardless of gender.

ADHD Challenges That May Lead to Writing Difficulties

Photo © Stockbyte

Writing Problems Common for Students With ADHD originally appeared on About.com ADD / ADHD on Saturday, September 24th, 2011 at 13:21:41.

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An Adult with Autism Follows His Passion

What can an adult with autism do with his life?

Some adults with autism are fortunate enough to find the supports to pursue their passion.

Lee is an adult with autism who followed his fascination with remote controlled cars - and found friendship, respect, opportunities and more!

An Adult with Autism Pursues Passion for RC Racing

An Adult with Autism Follows His Passion originally appeared on About.com Autism on Friday, September 23rd, 2011 at 12:14:26.

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The "New" DAN! and Autism Research Institute

The Autism Research Institute was out there first, and that's why they own that coveted URL: http://www.autism.com!

Given that the organization has been around for a very long time, it makes sense that there would be changes to their approach to autism treatment.

Dr. Steven Edelson, who took over leadership of ARI when the renowned Dr. Rimland passed away, provided answer to many questions about the "new" Autism Research Institute.  Most importantly, he provides parents with updated information about major changes to the DAN! (Defeat Autism Now!) approach to autism treatment.

The New Autism Research Institute Approach to Biomedical Treatment for Autism

The "New" DAN! and Autism Research Institute originally appeared on About.com Autism on Friday, September 23rd, 2011 at 11:51:18.

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An Adult with Autism Follows His Passion

What can an adult with autism do with his life?

Some adults with autism are fortunate enough to find the supports to pursue their passion.

Lee is an adult with autism who followed his fascination with remote controlled cars - and found friendship, respect, opportunities and more!

An Adult with Autism Pursues Passion for RC Racing

An Adult with Autism Follows His Passion originally appeared on About.com Autism on Friday, September 23rd, 2011 at 12:14:26.

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The "New" DAN! and Autism Research Institute

The Autism Research Institute was out there first, and that's why they own that coveted URL: http://www.autism.com!

Given that the organization has been around for a very long time, it makes sense that there would be changes to their approach to autism treatment.

Dr. Steven Edelson, who took over leadership of ARI when the renowned Dr. Rimland passed away, provided answer to many questions about the "new" Autism Research Institute.  Most importantly, he provides parents with updated information about major changes to the DAN! (Defeat Autism Now!) approach to autism treatment.

The New Autism Research Institute Approach to Biomedical Treatment for Autism

The "New" DAN! and Autism Research Institute originally appeared on About.com Autism on Friday, September 23rd, 2011 at 11:51:18.

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Neurophysiologic Effects of Spinal Manipulationin Patients With Chronic Low Back Pain

Chiro.Org Blog: Over the past decade there has been growing scientific evidence supporting the clinical efficacy [6-10] and effectiveness [11,12] of manual therapies in treating LBP. While clinical evidence supporting the efficacy and effectiveness of manual therapies has emerged, less scientific evidence has been offered to explain the effects and mechanisms underlying these treatments. The lack of a mechanistic underpinning hinders acceptance by the wider scientific and health-care communities, and it also limits the development of rational strategies for using manipulative therapies.

The Chiropractic Identity: Charting Our Future Roles

Chiro.Org Blog: For at least as long as any living doctor of chiropractic can remember, our profession has engaged in ongoing and sometimes heated debate about the proper role of its practitioners. Should our primary or sole focus be the spine? The nervous system? Vertebral subluxation? Back and neck pain? Should we be musculoskeletal pain specialists? Complementary care generalists? Primary care physicians?

What Aspects of Writing Are Most Difficult for You or Your Child?

Many kids and adults with ADHD find that the process of writing can sometimes be overwhelming. It may take longer to think through and organize thoughts, then get them down on paper. Or it may be that using a pen or pencil and handwriting is frustrating. Sometimes spelling can get in the way. Other times just keeping one's "train of thought" focused and on track can be a challenge.

If you are a parent of a child with ADHD or an adult with ADHD yourself, please share any areas that are difficult for your child or for you in regard to writing.

Share Writing Challenges Here

What Aspects of Writing Are Most Difficult for You or Your Child? originally appeared on About.com ADD / ADHD on Tuesday, September 20th, 2011 at 19:15:26.

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Strategies to Improve Writing Skills in Students With ADHD

Expressing oneself through writing is a complex, multi-step process that is sometimes challenging for students with ADHD. Luckily, there are strategies you can use to make writing a little easier.

Improving Written Expression

Photo © Thinkstock

Strategies to Improve Writing Skills in Students With ADHD originally appeared on About.com ADD / ADHD on Tuesday, September 20th, 2011 at 19:11:01.

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